SUP Saturday Rebellion

Lil' Red and FriendsPatience, recovery, and rehab…

I teach it. I preach it. I skipped it.

Lil’ Red’s whispers grew in my ear.  

Echoing, bellowing, 

“Let’s go to the river,” He shouted.

I ventured out for a short stand up paddle boarding session today.  Tie down straps did not work, the launch fees increased from 3 to 10 dollars.  The crowd started by 9AM when the grounds used to be ghostly until closer to 10:30.

My legs were shaky and my balance faulty.  There were no falls or splashes.  It was clear that I had skimped on my preparation.  My flexibility was surprisingly constrained when transitioning from kneeling to standing.  The muscles in both feet have been spoiled.  A few minutes later, I was back on shore.

It was nice to be back out on the water!

With new exercises in mind, I put Lil’ Red away for another day.


The 10 Stages of Lyme

Instead of going through the stages of grief I read about in school, it seems many diagnosed with Lyme disease traverse a different path.

Each path is unique but may look a little like:

  1. I know something is wrong, why haven’t the 5-30 doctors I have seen been able to find something.
  2. I might have what? Never heard much about that.
  3. Research: Cure Unknown, Under Our Skin, Dr. Google, Facebook, Beginner’s Guide to Lyme Disease, Why Can’t I Get Better?
  4. Antibiotics, maybe IVs
  5. 20 different supplements
  6. Diet-no sugar, no gluten, no dairy, non-GMO, organic, unless I cheat.
  7. Outrage, petitions, t-shirts, protests
  8. Homeopathic, ayurvedic, herbs, oils
  9. Biomat, sauna, Epsom baths, EMF tents, coffee????
  10. Sigh, maybe no more Dr. Google

What would you add?

Ode to Pontiac

car wheel


I was going to post on TMD and sleep studies, as I promised earlier.  However, I would then have to get all sciencey and everything.

As I was driving this morning, I noted that my Civic was over 120,000 miles.  It is running well and looks not a day over 50,000. (–knocking on wood–).

My last car was a Pontiac.  Someone had told me, “When it hits 100,000, start looking for a new car.”  The alternator needed replacing every 1-2 years by the time it hit 90,000 and so I started to casually browse new cars.  I thought that I wanted another Pontiac.  Every year, I would look with hope in my heart at the new models being released.  Each year, I would say with disappointment, “Maybe next year.”  The year before Pontiac closed I remember being heart broken as I watched the new GM advert.  They were oh so proud to present a line of gas guzzling pickups and SUVs.

My relationship with Pontiac had begun over a decade before (Likely 2).  I had been taken to the dealership to shop for a new car.  The memory from a child’s eye was that I was actually helpful in picking out a new car.  I remember being asked which car I liked and that was the one that found a new home.  That car would later become my first car.  I learned to drive on that standard transmission and it stayed with me until it was time to go to graduate school.

The last of the Pontiacs made it to 110,000 miles.  It was acting a little weird the night before and barely made it to work the next day.  The last 2 repairs had cost $800 each.  Another quart of oil to get to the rural corner of the parking lot.  I called a charity to come pick it up and I called some friends for a ride to the Honda dealership.  I remember those cars fondly.

I must thank Pontiac for going out of business.  Otherwise, I would still be replacing alternators.


From wikipedia

Open the Curtains and Look at the Fog

Time for some Lyme updating….

After sticking my head in the sand, I had to make my way back to reality.

December brought with it TMJ pain.  I will get into to TMD issues and treatment after I try out a new mouth splint that I am getting this week.  The reason I mention it now, is that I needed to go on a soft food diet for a few weeks.  It is REALLY hard to not eat any sugar and carbs when on a soft food diet.  Then came the holidays.

The sugar fest led to a Candida party in my brain.

Clearly the Diflucan and the months of trying to behave after the antibiotics did NOT clear the issue.  I picked up a couple of boxes of CandiGone.

I followed the directions on the box with one extra day at the half dose.  On day 2 my cervical lymph nodes were a little more swollen than usual.  On day 3, cervical and axillary lymph nodes were swollen and holy night sweat!!!

I never experienced such a distinct and clear die off from any of my Lyme/Bartonella treatments.

I woke almost giddy in the knowledge that it was working….then I washed my pillow. 

Over the next couple of weeks, I felt as if a curtain had been lifted but there was still a fog.

Back to the LLMD with new blood work.  He started me on the Byron White formula for Lyme disease.  I started at a low level and am working up to the desired dose.  I may need another round of CandiGone (or something), but, for now, Lyme will be the focus.

He approved a supplement that I had just started on my own (that we had discussed but not added previously).  Ashwaghanda has been amazing for my energy!!

Ashwaghanda is an adaptogen for adrenal support.  It is supposed to give you energy in the morning and calm you at night.  I have to take it first thing in the morning, or I will have severe issues sleeping.  Apparently, I am not adaptogenic.

Blood test FYI/TMI

CD57:  27 (was 22 in 2013)

D3:  22  (I had been stuck at 37 so I changed to another brand….wrong move)

Western Blot: only + was IgG 41 through Quest (2013: tested all negative Labcorp, positive for 31, 34, 41 through IGenex)

Cholesterol 144

A1C: 5.3%

Coming Attractions: Sleep studies and TMD